MASSEY UNIVERSITY (Palmerston North, Nouvelle Zélande)
ISBN / ISSN:
ISSN 0968-7599
Année de publication:
2021
Date de publication:
01/05/2021
Résumé:
For parents of children with cerebral visual impairment, the greatest need during the diagnostic period is to gain knowledge about their child's visual difficulties. Unfortunately, through lack of information, many parents are often left confused and unsure how to help their child. To better understand the impact this lack of information has in relation to empowering parents and helping them to confidently develop into parental advocates, parents of children with cerebral visual impairment were invited to participate in an online survey. Responses were received from nine different countries in North America, UK, Australasia and Europe. Information gathered included: parents' experiences during the diagnostic period, their attainment of knowledge as their child developed and their level of empowerment in relation to the services their child receives. Findings suggest that parents who did receive information at time of diagnosis have more positive relationships with professionals, feel more empowered and are more confident in being parental advocates. [Résumé d'auteur]